Dr Koch would like Emma's levels to stay between 120-360. Here are her levels from birth until current so you can get an idea of how much they can change. Here is a picture of Dr. Koch, Me and Mommy. He is the grangfather of PKU because he has been researching it for over 40 years. He is now 80 years old and retired, but he still gets around very well, and is involved in the research at Childrens Hospital Los Angeles.
Now that Emma's levels have stayed at a constant, we have now been working with Dr's and a Dietician over at CHOC. Mary, the dietician has done an excellent job at keeping Emma's levels in the safe range.
We will still keep in touch with Dr Koch because when Emma is old enough, we can take a sample of her blood and have it sent to Denmark to be tested. The Dr's there can tell us what Emma's DNA is so we know how severe her PKU is.
4-1-06: 397
4-3-06: 794
4-16-06: 1692
4-18-06: 1839
4-25-06: 1359
4-26-06: 1031
5-1-06: 216
5-4-06: 562
5-11-06: 1243
5-16-06: 586
5-28-06: 121
5-31-06: 135
6-7-06: 289
6-14-06: 60.9
6-21-06: 140
6-28-06: 284
7-5-06: 72
7-12-06: 296
7-19-06: 212
7-26-06: 240
8-2-06: 202
8-9-06: 304
8-16-06: 510
8-23-06: 224
8-30-06: 175
9-6-06: 210
9-13-06: 180
9-20-06: 161
9-27-06: 115
10-4-06: 225
10-11-06: 253
10-18-06:211
10-25-06: 281
11-1-06:
